top of page

A voice for stroke advocacy.
Health Research


The Problem With PPI: How Health Research Confuses Involvement With Leadership
From NIHR governance gaps to the Patient-Led Research Collaborative - why the fix isn't more involvement, it's different standing. Series: Letters to the System · Letter 3 of 6 To: Stroke and neuroscience researchers running PPI panels PPI panels operate on a familiar sequence. Researchers design a study. They write the protocol. They submit the ethics application. At some point in this process — usually after the study design is fixed — they invite people with lived experien

Maya Kuzalti
Aug 37 min read
bottom of page